Taking Charge

Community Passport

As with any health condition, knowing what to expect and how to cope is important, as is knowing about your community resources and how to use them well. The Community Passport provides you with an overview of resources and information about how best to live your life – including the parts of your life involving work, family, and social activities. The Passport will also guide you to additional community allies – providing services and programs – to help you live well with epilepsy.

» Download the Community Passport. (PDF)

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Sharing Information With Your Health Team

It is important for individuals with epilepsy to take charge of their lives and their treatment. By arming themselves with facts about epilepsy, each person can become empowered to live the fullest possible life, despite the challenges of epilepsy. Part of this process is asking questions and gathering information. When you start treatment for epilepsy, you may experience changes in your mood, appearance and health. It is important to note these changes in a log or journal and bring them to any discussion with your health team so you can make necessary treatment modifications to increase your quality of life. We have developed a self-evaluation tool to assist you, and more information, including details on possible changes, is available in our Taking Stock section.

Locally-based Epilepsy Foundations provide information and referral services tailored to their communities, many of them through toll-free lines; they sponsor professional education seminars for allied health professionals and educators; they mobilize individuals to serve as advocates; and they participate in public education campaigns.

To find the Epilepsy Foundation in your community, please select your state or enter your zip code below.

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Bill of Rights

People with epilepsy should take an active role in managing their healthcare and ensuring their rights are respected; however, any and all treatment decisions must be made together with their healthcare team. Find out more about the Epilepsy Bill of Rights.

Epilepsy Bill of Rights Logo

Download the Bill of Rights (PDF)